I am a Mum of six children two of them having severe and complex needs. One of my sons, is sixteen and has Tuberous Sclerosis, which presents him with mild Autism and learning difficulties, as well as a whole host of other problems and disorders.
Since the press coverage of our app last week, I’ve received a huge number of enquiries from parents, teachers and other people who are close to children with autism.
Another new experience for me this week – composing a press release in advance of the publication of our app on the Apple Store tomorrow (11th January 2012).
The post you’ve all been waiting for with baited breath – the why’s and wherefore’s of the Research Ethics approval process! But seriously, this is a big issue for researchers, participants in research and the general public.
8th December 2011, 1.29pm: I had intended to make this blog about the process of getting ethical approval for a research study: hard work and poorly understood by anyone who hasn’t done it, including me until last year!
25th November 2011, 9.47am: My first proper blog post. The issue that’s really exercising the team right now is about Intellectual Property rights, licensing and so forth. The big question is how we ensure a life for the CLICK-EAST game after the current research grant runs out.
This is an experiment for me! I’m running the CLICK-EAST study and I’m going to try keeping a blog from now until the end of the study in July 2013.